A woman by the name of Cyn left a comment recently. It was on the post where I let my hormones take over and began bitching about lurkers. (Sorry about that, guys.) Anyway, Cyn left a comment as well as a link to her Web site, which I clicked. It turns out Cyn and I have mutual friends. But that’s a story for another day.
A little over a year ago, J. Robbins (of Jawbox and Burning Airlines fame) and his wife, Janet Morgan, gave birth to a baby boy named Callum Robbins. Tobyjoe and I hadn’t seen Janet since she first found out she was pregnant. She was glowing with the news. We were both so happy for them. They had a baby boy on January 27th, 2006. Of course he’s the cutest little fella.
About 8 months into little Cal’s life, J. and Janet discovered something about their baby that no parent should ever have to. Their son had SMA Type 1, or Spinal Muscular Atrophy. It’s a terrible disease. Most babies with Type 1 die before their 2nd birthday. But Cal is actually a very healthy baby boy. He breaths well, he’s active, and he babbles frequently. He’s a strong little boy with two, very strong parents.
Tobyjoe used to work with Janet at Threespot Media in Washington, DC. And J. Robbins has been a part of the music scene since I was a mere lad. They are two wonderful people and it breaks my heart to hear this about their son. I’ve spent the last two days trying to figure out what I can do to help with a miracle. (Seriously, y’all, every time I see his little face I tear up. I know I’m hormonal, but my goodness, what an absolutely wonderful little person.)
J. and Janet have health insurance but most of the conventional means of treating SMA don’t yield the greatest prognosis. And the alternative stuff, which might bring them a better outcome, isn’t usually covered by insurance. That’s why I am writing today. They need our help. So, if you’re feeling a little generous today, maybe you once loved Jawbox or Burning Airlines and have “borrowed” an album (or two) off your friend’s computer, maybe you just like babies, please stop by and visit their Web site. Read their story and (if you’re able to) donate a few bucks and help make their lives a little easier during this very difficult time.
I know that many of you may not know these two personally, and I know that money is tight for a lot of people, but if you can help them out in any way possible, I am sure they would be eternally grateful. And if you don’t have any extra cash lying around, maybe you could see about getting the word out there. If you have a blog, link to it. If you know people who know people, tell them about it. You know how it works.
Read more about Cal (includes donation information)
Just Give% (Donations for SMA families)
I am going to turn off comments for this post. But if you have any questions, feel free to email me at mihow [@] mihow.com.