(This might be the most boring post I’ve ever written. But I wanted to put it out there on the off chance another person is suffering as well.)
I was 30 and living in San Francisco when I first wrote about it. I wrote about the razor rash on my legs. At the time I thought it was from not ever changing my razors due to my neurosis about sharps in landfills. That wasn’t the case.
I moved back East and it persisted, sometimes it got worse, sometimes better. But it never fully went away. I wrote about it again.
I’ve been to at least a dozen doctors over the years. I’ve seen gynecologists, fertility specialists, primary care physicians, allergists, dermatologists, endocrinologists. I even asked a psychologist about it. The best I got was a prescription strength steroidal cream from a dermatologist. That helped, but it still didn’t go away.
Not one doctor had an answer for me. No one even seemed to care. I became more miserable and they wrote my misery off as razor rash or dry skin.
I decided I’d probably live this way forever.
But then last six months things have become much, much worse. The rash and hives have spread. They’ve moved onto my thighs and hips. And have finally reached my stomach and arms. Living a comfortable life was becoming increasingly more difficult. I’d wake up at night with blood on my shins from scratching. In the evening the rash was always worse. The removal of a pair of socks or pants seemed to trigger it. Taking off my bra made my chest itch. I stopped wearing shorts or skirts.
There was no relief. I tried every over-the-counter cream I could find. I gave up soap. I used certain detergents, none at all. I stopped taking hot showers, would go a few days without one. I stopped shaving. Started using natural ingredients only. Nothing got rid of the itch. I began to think maybe I was making it all up, that it was all in my head; maybe this was the first step into complete madness.
Desperate, I asked Twitter for new dermatologist recommendations because the woman I’d been going to for years wasn’t helping. On top of that she has a two-month waiting period. It didn’t even seem as if she listened to me anymore.
Missy came to my rescue. She suggested I see her dermatologist. This doctor had answered a lingering skin question for her. I got an appointment for the following week. This time I’d go in and beg for help. I wouldn’t leave without some sort of answer, even if it was just a plan.
On Monday, a 7-year long question MAY have been answered. After running a test on my back, the dermatologist diagnosed me with Dermatographic Urticaria, or chronic urticaria. She said there’s no way of knowing how or why I developed it. Usually there’s an event that jumpstarts it. A person might be bitten by a lot of mosquitoes all at once, triggering an intense histamine response. That response is remembered and the body begins creating its own hives. It could have started from stress. No one knows.
Here’s the bitch: the more I scratch, the more my body releases histamine creating a terrible cycle. The more hives, the more scratching; the more histamine, the more itching. Repeat until I’m covered in hives.
There are some days I look like a leper.
She prescribed me a super strong allergy medication, which will turn me into a zombie. I have two kids. One is a baby. Turning into a zombie, unable to stay awake, is not an option for me.
When I got home that evening, I had the biggest outbreak I’ve had in a while. I scratched myself raw. My mother was visiting and asked me to stop and I couldn’t. We covered my legs in ice and I took a Benadryl. It helped. About 30 minutes after the itching stopped, I had a piece of dark chocolate. My legs broke out immediately. I took a picture.
That’s when I realized that I’d had chocolate right before the initial outbreak. Could this be a food thing too? And, if so, could I find a cure without using medication?
So I researched. I discovered there’s low histamine diet where one avoids foods containing high amounts of histamine. You can’t avoid the chemical entirely, but avoiding foods containing higher amounts can help. Here’s the list.
The surprising thing is, several of the items on that list have given me allergic reactions in the past—more common allergic reactions. (At age 26 I went into anaphylactic shock after eating shitty shellfish. I have had an epi pen ever since.) Cinnamon is on that list, as is red wine, cheese, chocolate and bleached flours. Most processed foods trigger high histamine responses. And preservatives are the devil. All of those items, except for cheese, have given me problems in the past. (During my allergy screening, cinnamon and lobster were my two highest offenders.) What’s more fascinating to me is that the longer shellfish and seafood has been sitting around, the worse the histamine response. This explains why fresh seafood and shellfish doesn’t give me any problems. Weird, right?
I am entering day three of this diet and my itch is gone. I have no new bumps (the old ones are still healing) and there haven’t been any hives at all. Not one.
So, I’m going to follow this diet for at least a month to see if it does indeed help. I need to go for at least that long to make sure this isn’t still a hormonal issue, which is what I thought was the case in the past. One thing is for sure, this has gotten much worse the older I get and seems to progress with every pregnancy.
This diet hasn’t been easy! I don’t eat red meat and I enjoy seafood a great deal. So the list of what I can eat has become really, really small. Even soy products are a no-no for now. And I eat a great deal of soy. And giving up chocolate might be impossible, but at least I can cut back on everything and sneak some treats in from time to time. That is, if this works. If not, I’m back to square one.